Wednesday, December 31, 2014

ITP relapse

Sunday I was at my parents house in Arkansas enjoying our Christmas break.  On our way back to their house after church I was driving and noticed odd looking bruises on my hands and arms.  My first thought was "oh no! ITP!"  Then, I thought... "No.  It's probably the hustle and bustle of Christmas and traveling. "  

The next morning I noticed more bruises and by that evening I had small petechia (little red dots of blood) on my chest, and arms.  I knew something wasn't right.  I decided to pack us up and head home.  If something was wrong, I didn't want to be away from my doctors and home, and support network of friends where we live.

I dropped the kids off with tony at the house and went to the closest ER.  They checked my platelets and my lab results showed my count was 14,000. This is extremely low and very high risk for bleeding our, and other complications.  Platelets help your blood clot.  and without clotting, it's a bad thing.  ITP stands for Idiopathic Thrombocytopenia Perpura. Google it, or look in my archives back to 2009.  That's when I was first diagnosed.

Ok, back to the story...

This little hospital I went to transported me by ambulance to a bigger hospital downtown Tulsa that has specialist for my disease.  I have a team of Hemotologist Oncologists working on my specific case.  My ITP is not like the typical cases.  My blood is different and they aren't sure why. They are doing a new experimental treatment on me over the next four days and will track progress closely. (More on that later)

Please pray for my platelets to increase.  Pray for Gods provision for this hospital stay.  Being in the hospital two different calendar years equals two different $3,000 deductibles.  Pray for my babies at home. They miss me and I am missing their time away from school at home for break.

We covet your prayers and are believing in miracles!

Summertime Steadiness

Is anyone else having trouble finding routine in the craziness that is summer 2020? I am a planner. Yes, I still carry around a paper planne...