Friday, January 2, 2015

First Full Day Back at Home

Yesterday I was greeted with these precious signs and washi-tape hearts on the door when I got home.  

Tony took care of Hazel through the night last night and let me rest.  What a great night of rest in my own bed at home!  

My mom and Grammy made the family breakfast this morning then headed to Mississippi to get Grammy back to her house.  I am so thankful for them and how much help they were here!  Grammy pretty much folded laundry 24/7! Between getting behind at Christmas, to returning with a weeks load of dirty laundry from our trip, we were quite behind.  We still have missing socks. Where do all the socks go? 

Hazel bonded quite a bit with my mom (aka: Nonnie) while I was in the hospital and even started calling her nonnom.  It is so sweet! 

It was sad to see them go, but I was full of gratitude as I watched them drive away.


I am so thankful that I am alive, on the uphill climb of healing, and safe inside my home again.


When they left, my brother Nathan and his new Fianc√® Holly came over to help.  Boy, was it nice to have them here to wrangle the kids, help us sort through Baby proofing toys, and take down Christmas lights outside.  We even fit in a tutu dress up princess playtime while Nathan shot nerf guns with Tobin and Tony put away laundry. Keeping the kids entertained is a full time job, so it really helped having them here for a few hours! 

I took my (hopefully) last giant dose of high octane drugs today.
 I go Tuesday to get my labs checked and meet with my Hemotologist Oncologist.  There will be many appointments in the next months to make sure my body is responding to treatment and my platelets don't decrease.  This steroid regimen is different than my last treatment and quite experimental.  It's only been done on 7 people so far.  We have high hopes it will do the trick! 


The side effects from the drugs have taken a toll on me today.  My body aches, heart races, and I am shaky, yet at the same time I am weak and tired.  Since the steroids ramp up, I am having trouble actually sleeping.  It's quite a weird feeling to be tired and weak but not get to sleep.  I have quite a bit of swelling which they expect to go down pretty quickly, so I am hoping for that!  The steroids also make me an eating black hole.  It has been an interesting day.  Please pray that my body will allow me to rest well tonight.


I didn't really write much about breastfeeding, but I was able to pump in the hospital and my milk tested safe for Hazel which was such a blessing and answer to prayer!  The drugs I am on now have dropped my supply quite s bit, so I am praying my milk increases.  She is eating quite a bit of food and tolerating bottles wonderfully.  All of this is an answer to prayer as well. You can continue to pray for these things. 

Sweet friends brought dinner last night and tonight which has been such a blessing!  Hazel enjoyed French fries tonight with her new 6 teeth!  
There has been a meal train set up and posted on my facebook page hat our amazing church family has set up.

Thank you for all the amazing prayers and support.  You can continue praying for the requests on the previous post.  I'll let you know when specific prayers have been answered, or new ones are needed. 

Please know that you have witnessed another modern day miracle from our Lord!  I cannot believe I get the privilege of letting the lord use my body as a living testament and miracle from him! What an amazing honor.  


I'll update tomorrow! ~Rachel

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